Those are multiple red flags. I would have politely asked for the Nursing Supervisor on the following shift if I knew I was going to be staying over for a while and the other nurses on that shift didn’t make me feel confident.
…and not the unit’s charge nurse but the Sup.
If I got good vibes with the next nurse to swap in during that shift I would have politely asked if everything was ok.
I told them I had to check my schedule at home and would call to make a new one. I haven’t. May not unless I need to. It was a follow -up to all the heart tests I had six months past that all said I was perfectly fine.
I am back to my old self. I got my meds all sorted out. The new one costs $.55. A far cry from $1500.
I don’t even know where to begin looking. This one is part of my liver team and I met with them once. I know my contact info is correct because I received a phone call on Christmas Eve confirming my last appointment.
So I dunno. Not even sure it would do much good anymore.
It can’t HURT. I would like to think they have a better grasp on mental health with transplant patients, the meds they are on, and how all that interacts with other diagnoses.
Do you have a patient advocate at the hospital or as part of the transplant care team? Tell them what is going on and that you need help. That you seem to have failures each time you try, despite having the appointment set up. If not that, if you have a primary care doc or another doc you see regularly you can ask for a referal or recommendation.
I also strongly suggest finding a therapist who works with persons on the spectrum - including higher functioning adults like you. So many things in life make sense when viewed through the spectrum lens and the tools we can use are different. What works for average anxiety for example, may not work well with someone on the spectrum with sensory issues. I ended up with a lot more progress once I finally got a diagnosis and could get them to stop throwing the same old workbooks at me.
Honestly, I owe pretty much everything right now to one of our former MVPs who was a post-doc researcher at a University. I was in a really bad place and she actually had experience with women on the spectrum and how differently it presents. It was still a long road but it got me to a diagnosis and way better care.
I have my social worker. Maybe they would be able to help. Think that would be my best shot. I really don’t know anyone who works with anyone on the spectrum. Honestly I feel like I’m just an annoyance when I try to talk to anyone.
I hate coming in here when my mind is in a bad place. I hate seemingly being unable to just have a nice conversation with someone. I hate being alone in this room with nowhere to go.
I think I’m just going to get off the forums. I don’t think I’m bringing any good with me.
I can say with almost complete certainty, that we don’t want you to leave. We all have our struggles and the lounge is something that brings us together like family.
You’re simply not allowed to leave
We all are here to help one another, uplift eachother in times where we struggle, and support each other no matter the issues at hand.
You are important to us. You matter and I know that I’d hate to see you go.
So if for no other reason stay because Perl said so
I’m a little disappointed with some people in GD turning my thread into a topic about something else… But appreciated you stepping in and putting a stop to it.
Really starting to wonder what is going on with my Google Assistant.
Twice now it has told me “I’m just doing my job.” Once when I asked it to turn on my sleep sounds by activating it with “Hey, Google”. The second time it just blurted out that phrase while I was talking to Stormy and hadn’t mentioned any activation phrase.
It will also just randomly respond to us talking and interject its thoughts about the subject matter.
See, this creepy always listening thing is why I have no smart devices in my home. Nothing. At least that I can think of. I have the phone and computer assistant’s turned off.
Just had an evacuation warning pop up on the phone. Looked at it, and I shouldn’t have received it since it is for an area about 5 miles away from here at the closest.
Ok! Last shift before a three day weekend. There’s a winter storm warning for my area starting at 6am which is right when I get off work so hopefully it isn’t too bad. They are shutting the plant down until Sunday though so I guess they are expecting inclement weather.
Our weather alert ends at 6 am, so it may still be snowing when I leave for work before 5. They said 1-3 inches, but when I went out to raise my windshield wipers, there was already at least 1.5 inches on my car, closer to 2, which I cleared off since I was there anyway. By the time I went inside, collected the trash, and took it to the dumpster, my windshield was already completely covered again. So I’m thinking it’ll be 3-4 inches. I just hope it stays the nice fluffy snow we are getting now and doesn’t turn back to the sleet and ice we had Saturday night. I also hope some trucks got to the store last night and today. Otherwise the shelves are going to be a bit bare, and this new snow isn’t going to help.
Update: while I was writing this, they changed it to a winter storm warning and said 5 inches.
Stay safe, everyone, whether you’re in snow lands or fire lands or summer flu lands!