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411

I think you are just rubbing it in right now. But my electric bill
let me tell you the lack there of haha. Gas on the other hand
different story.

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412

Pfft. Pfft I say. Its been Friday for nearly 10 hours now


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413

:stuck_out_tongue_winking_eye:

414

Eileth

My beloved died from the adult form of that disease, myotonia dystrophica.

There is some good news as well
a Japanese scientist has what he hopes is a possible treatment for Duchennes, using the bodys own cells. Clinical trials are still years away, but we are making progress.

We will beat it one day. We will. It isnt if, its when.

For the adult form of this genetic disease, no treatments yet. Men have been known to reach their 70’s, for women, especially type 2 myotonia, life expectancy after 60 years old
is 12 %.

Ive spoken to geneticists, neurologists, ICU specialists, read every article I could find, educated myself as best I could without a formal degree. Every day we make advances, every day we come cioser.

One day, no more defeats. One day, no more grief, no more loss.

Too late for her
too late for many
but for others, there’s hope. There is always hope.

Life’s a gift.

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415

/hugs Aeve

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416

Yes, in the place you live, which everyone knows doesn’t really exist.

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417

You’re just mad because you didn’t know what devon was


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418

Because it is a made up word


420

There are two accepted ways to determine the actual time (day date year) at any moment, UTC offset or the time on my alarm clock or phone where I happen to be.

All other methods (i.e. the time on any else’s alarm clock or phone where they happen to be not expressed as UTC offset) are simply wrong.

421

To those who can dream, there’s no such place as doesn’t really exist.

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422

An English county on the South West peninsula of the island of Great Britain (that I’ve never been to)?

Or the cream; Devon to most but Cornish to some folks? (my family are Irish, so just clotted cream to me).

Or something more esoteric that I also don’t know?

423

I think you guys call it bologna. We call it (amongst other things, like fritz), devon. Its typically eaten by primary school aged children, in a sandwich with butter and tomato sauce. But only on white bread.

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424

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425

Bologna, named after Bologna the city in Italy by Italian immigrants in the US because of the similarity to the mortadella from that city, also spelled phonetically “baloney” in parts of the US, polony, for no reason I can think of in England (a lot of things in England I don’t understand, but whatever) I wasn’t aware that it was called devon down under.

It is properly eaten on white bread with yellow mustard, preferably fried, optionally with Velveeta cheese.

EDIT; As a side note:

Devon or Cornish or simply clotted cream is one of the British inventions that almost makes up for the rest of their cooking (must admit they also do fish fries better than most in the US, and know how to do breakfast).

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426

So apparently there is a massive Halo exhibit that will be traveling around the US later this year. I am super stoked for it. :smiley:
(Is this the wrong place to post this? I still want to share it with all of you!)

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427

Great, 10 day weather forecast is full of snow as in snow each day. We hardly ever see snow. I must make a snowman.

“Do you wanna make a snowman?”

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428

It was a beautiful day in Florida today. I watched the sun rise going over the Dames Point bridge in Jacksonville. Had to take hubby to Mayo Clinic there.

Just wish the traffic hadn’t been so insane. Since he is unable to drive now, I’ve had to take over that role. I do not enjoy it.

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429

Normal Jaina went kersploosh tonight.

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430

It’s sad to see what’s happening down there; The Great Barrier Reef is dying slowly too according to what I have read; Sad days
 :weary:

431

Hasn’t the reef been shrinking for a while now?